Finally A Smile On The Face:

Yes, after a long and tough phase, there's a little chance to smile :) ..

Reports had come from US yesterday(27th June) and she was admitted in hospital again.

sDoctors said, they are going to start the process for BMT from Monday and until then she will be given anti-biotics.

Her brother(Donor) is yet to come and he may reach vellore in a day or two. Once he reaches they will keep him in observation for two days and then they do the BMT using his HLA components. (Not sure of the exact name of the component).

So, I believe in a week of time we will get to know the status of her condition and I think until then we may not be able to speak to her.

ALL THE BEST RAMALAKSHMI.

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What could be the reason again???

One reason for this is:

Till now doctors were under perception that 5/6 HLA match should be fine to proceed for BMT but after looking at her health condition they have decided not to take risk. They had a meet amongst all the BMT specialists and further agreed to send the samples to US for further tests so that they can give proper medication.

What are the RISKS if BMT is done as is:

As you all aware by this time, post BMT(After the opearation) is very critical. For atleast 2 years she is prone to get many diseases. She needs to take care of herself without getting effected to any kind of infections. Her resistance power will be very less.

We need to spend almost the same amount as we spend to operation(BMT) to overcome those affects.

In any case if BMT is not done properly, the percentage chances of getting infections will be high. There are even chances that everything fails and come to the beginning.

Note: I got this information after speaking to Ramalakshmi. However we are not sure if there is any other reason. I would request everyone to pray for the best.

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BMT again got delayed...

First of all our sincere apology for not updating blog for long time...

News from hospital is not good, still we are waiting for BMT date due to some problem with HLA test. Although we have deposited 6 lakhs for BMT. Currently she is undergoing dialysis and some other medication for fungi problem. Roughly it costs around 40-50 thousand in 15 days.

Details about Human Leukocyte Antigen(HLA) test:

There are two type of HLA test available(as par my understanding), one is 6 antigens test other is 10 antigens test. Ramalakshmi and her brother have undergone through 6 antigens HLA test, out of theses 6 antigens 5 have matched. So now doctors want to go for 10 antigens HLA test for both. But unfortunately 10 antigens test is not available in India so they have sent the blood sample to USA. We are hoping that by 1st week of July we'll get the report. Once the report will come doctors will proceed for BMT.

Now first question that comes in our mind why doctors have waited till now for this new test? I too don't have any answer....probably they send only samples for test after deposition of minimum amount for BMT. But in my opinion they should have sent at least for the test earlier , that would have saved the time ....


This was update from medical side...

Now some more update about Ramalakshmi....

Just I had chat with her few days back. She is now interested in learning Hindi, because whenever she goes to hospital she has to interact with many Hindi speaking people . So she has requested a Telugu-Hindi self learner book. I have already sent the book, probably she will get in few days.

Apart from learning Hindi, she also wants to improve her English vocab . She has also planned to write a book about her own experience like Lance Armstrong.

I salute the fighting spirit of this girl...amidst all problems she has still kept motivated herself...

Once again We thank all the donors and well wishers for their constant support....We are looking forward for the same...

Feel free to contact us for any further update.

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