Save Ramalakshmi

Its been 2 years you are away :(

2011-07-21T20:10:00.000-07:00

Its been 2 years you went away from us but your memories are very very strong ..

we are missing you.. Ofcourse in memory of you, we could help/support 3 people suffering from Aplastic Anemia and see them healthy and today we are supporting 3 more whom i wish will be recovering soon.

Our group H2O(Hearts to Help Organisation) is dedicated to you... REST IN PEACE RAMALAKSHMI..

RAMALAXMI IS NO MORE. We really miss you dear..

2009-07-22T21:41:00.001-07:00

Friends...it was a 3 year journey she battled for life..finally, yesterday death defeated her. I really have no words. I know how people worked for her. How people wished her future.

Its Shocking. I begged doctors to use all their experience and try any kind of treatment for the miracle but with no use. She expired. She left all of us alone.

Ramalaxmi, May your SOUL rest in peace.

Sad news...

2009-07-22T08:31:00.000-07:00

Ramalakshi passed away today(22-07-09) at 9.30 AM...she is no more with us...

Situation is very serious. GOD PLEASE SAVE HER...

2009-07-21T10:52:00.000-07:00

Today morning I got a call from her brother saying that her condition is very serious.
This is very harsh to say but right now only half of her body is functioning properly.
Her total body is affected with fungus. Especially Lungs. She was unable to take proper breath. Doctors are supplying oxygen continuously. Even her kidney is not 100% perfect. She will be shifted to ICU tomorrow.

I am really shocked to hear this news but no body can change one's fate. No one can change GOD's decision except GOD Himself. So let us wish and pray for her so that He can hear and do some miracle. Yes, really we need a miracle now.

Coming 4 days are very very Critical.

Yes!!!!! BMT was done…. We are HALF way through…

2009-07-11T11:07:00.000-07:00

Finally, after all the hurdles and pains, transplantation got over. Thanks for the support friends. I was waiting for this day from almost 2 years. Yesterday was day A0. It takes almost 10 to 14 days to know whether the operation is success/fail. If it is success then new blood cells will be generated from her marrow. Really I am keeping my fingers crossed for the same. I strongly believe that we can cross this stage either.

I know how people worked hard for this to get it done. I should personally thank Mr. Sudheer and Mr. Anvesh Talluri for their hard work to connect people, contact media, organizations, meets and what not? They made me virtually present in their every effort. Guys, you are really superb. Of course there are lots and lots of people who really worked hard for this cause. I personally thank each one of you from the bottom of my heart.

And now, we are half way through. Once the cells start producing, we should also be ready to support her for all the side effects she’s going to face. So friends please don’t stop working, we should see her stand on her own feet doing a job and support her family.

She should be in hospital for almost 2 to 3 months from now in CMC. GOD, please give her strength to overcome all those hurdles.

Blood donors required

2009-07-08T03:17:00.000-07:00

Ramalakshmi's BMT process is going to start on 10th July. Friends, She needs almost 4- 5 blood donors per week for the next 2 months. This is very important...

If you know somebody at Vellore or in its vicinity, kindly pass on this information. Your timely help will give life to someone ...

People living in Chennai can also come and donate blood.

Chennai to CMC Vellore:

Driving Directions

Step Distance

Total Distance

View

1. Start from Chennai, Tamil Nadu and head South on VOC Road	359 m	359 m
Cross the following on your way: Rattan Bazar Area at 180m
2. Turn left on General Hospital Road (NH 4)	772 m	1.13 Km
Cross the following on your way: Chennai Central Railway Station Area at 186m
3. Continue on EVR Salai (NH 4)	709 m	1.84 Km
Cross the following on your way: Park Town at 0m, Vepery at 436m
4. Continue on Poonamallee High Road (NH 4)	7.21 Km	9.06 Km
Cross the following on your way: Kilpauk at 1577m, Shenoy Nagar at 3364m, Bharathipuram at 4384m, Anna Nagar at 5139m
5. Enter the roundabout and take the second turn on Poonamallee High Road (NH 4)	8.41 Km	17.47 Km
Cross the following on your way: Koyambedu at 0m, Sri Iyappa Nagar at 590m, Nerkunram at 1337m, Maduravoyal at 1620m, Vanagaram at 3238m, Vellappanchavadi at 5972m, Puliambedu at 7837m
6. Take the flyover and continue on NH 4	4.87 Km	22.34 Km
Cross the following on your way: Poonamallee at 543m, Varadarajapuram at 3454m
7. Bear right on Bangalore High Road (NH 4)	8.54 Km	30.87 Km
Cross the following on your way: Nazarathpettai at 862m, Thirumazhisai at 1531m, Sembarambakkam, Poonamallee Taluka at 2655m, Thandalam, Sriperumbudur Taluka at 5062m
8. Take the bridge	116 m	30.99 Km

9. Continue on Bangalore High Road (NH 4)	5.45 Km	36.44 Km
Cross the following on your way: undefined at 3024m
10. Continue on NH 4	69.79 Km	106.23 Km
Cross the following on your way: Sriperumbudur at 0m, undefined at 7155m, Kaveripakkam at 60017m
11. Continue on NH 46	27.14 Km	133.37 Km
Cross the following on your way: undefined at 0m, Walajapet at 3006m, Ranipettai at 5147m, Arcot at 7952m, Melvisharam at 10873m
12. Take the flyover and continue on NH 46	914 m	134.29 Km
Cross the following on your way: undefined at 0m
13. Take the Sathuvachari Flyover	1.28 Km	135.56 Km
Cross the following on your way: undefined at 0m
14. Turn left	642 m	136.21 Km
Cross the following on your way: undefined at 0m
15. Enter the roundabout and take the first turn on SH 9	59 m	136.27 Km
Cross the following on your way: undefined at 0m
16. Continue on SH 9	448 m	136.71 Km
Cross the following on your way: undefined at 0m
17. Enter the roundabout and take the first turn on SH 9	34 m	136.75 Km
Cross the following on your way: undefined at 0m
18. Bear left on SH 9	878 m	137.63 Km
Cross the following on your way: undefined at 0m
19. Take the slip road	69 m	137.69 Km
Cross the following on your way: undefined at 0m
20. Continue on SH 9	5.32 Km	143.01 Km
Cross the following on your way: undefined at 0m
21. Bear left	64 m	143.08 Km
Cross the following on your way: undefined at 0m
22. End at Christian Medical College Rehabilitation Institute, Vellore, Tamil Nadu (CMC)	0 m	143.08 Km

courtesy MapmyIndia

Finally A Smile On The Face:

2009-06-28T03:29:00.000-07:00

Yes, after a long and tough phase, there's a little chance to smile :) ..

Reports had come from US yesterday(27th June) and she was admitted in hospital again.

sDoctors said, they are going to start the process for BMT from Monday and until then she will be given anti-biotics.

Her brother(Donor) is yet to come and he may reach vellore in a day or two. Once he reaches they will keep him in observation for two days and then they do the BMT using his HLA components. (Not sure of the exact name of the component).

So, I believe in a week of time we will get to know the status of her condition and I think until then we may not be able to speak to her.

ALL THE BEST RAMALAKSHMI.

What could be the reason again???

2009-06-26T00:58:00.000-07:00

One reason for this is:

Till now doctors were under perception that 5/6 HLA match should be fine to proceed for BMT but after looking at her health condition they have decided not to take risk. They had a meet amongst all the BMT specialists and further agreed to send the samples to US for further tests so that they can give proper medication.

What are the RISKS if BMT is done as is:

As you all aware by this time, post BMT(After the opearation) is very critical. For atleast 2 years she is prone to get many diseases. She needs to take care of herself without getting effected to any kind of infections. Her resistance power will be very less.

We need to spend almost the same amount as we spend to operation(BMT) to overcome those affects.

In any case if BMT is not done properly, the percentage chances of getting infections will be high. There are even chances that everything fails and come to the beginning.

Note: I got this information after speaking to Ramalakshmi. However we are not sure if there is any other reason. I would request everyone to pray for the best.

BMT again got delayed...

2009-06-19T21:21:00.000-07:00

First of all our sincere apology for not updating blog for long time...

News from hospital is not good, still we are waiting for BMT date due to some problem with HLA test. Although we have deposited 6 lakhs for BMT. Currently she is undergoing dialysis and some other medication for fungi problem. Roughly it costs around 40-50 thousand in 15 days.

Details about Human Leukocyte Antigen(HLA) test:

There are two type of HLA test available(as par my understanding), one is 6 antigens test other is 10 antigens test. Ramalakshmi and her brother have undergone through 6 antigens HLA test, out of theses 6 antigens 5 have matched. So now doctors want to go for 10 antigens HLA test for both. But unfortunately 10 antigens test is not available in India so they have sent the blood sample to USA. We are hoping that by 1st week of July we'll get the report. Once the report will come doctors will proceed for BMT.

Now first question that comes in our mind why doctors have waited till now for this new test? I too don't have any answer....probably they send only samples for test after deposition of minimum amount for BMT. But in my opinion they should have sent at least for the test earlier , that would have saved the time ....

This was update from medical side...

Now some more update about Ramalakshmi....

Just I had chat with her few days back. She is now interested in learning Hindi, because whenever she goes to hospital she has to interact with many Hindi speaking people . So she has requested a Telugu-Hindi self learner book. I have already sent the book, probably she will get in few days.

Apart from learning Hindi, she also wants to improve her English vocab . She has also planned to write a book about her own experience like Lance Armstrong.

I salute the fighting spirit of this girl...amidst all problems she has still kept motivated herself...

Once again We thank all the donors and well wishers for their constant support....We are looking forward for the same...

Feel free to contact us for any further update.

Pch!! An Unfortunate moment again…Infection delays Operation for the second time.

2009-05-21T20:30:00.000-07:00

We thought we were all set to go for BMT until yesterday.

In one of the pre-BMT tests which she had undergone yesterday, we came to know that her nose and throat were affected with infection. Doctors advised us not to go for BMT until she gets cured for this infection. She is using few anti-biotic medicines right now to get rid of that. Hopefully in a week of time this gets cured and then we can go for BMT.

Let us all pray for her faster recovery.

Very encouraging response

2009-05-21T20:28:00.000-07:00

I am really glad to see the response from people all over the world which is really encouraging. In a very short span of time we could make almost half required. If this continues within no time we can get her out of the hospital healthy.

Thanks friends..Thanks a lot for your wonderful support.

Let us prove money is nothing when compared to HUMANITY.

Its time to act aggressively...

2009-05-02T06:36:00.000-07:00

Last 15-20 days were full with ups and downs..

--> Ramalakshmi has got HLA match with her brother (getting HLA match is not less then any miracle!!!) .

--> But unfortunate part is that her lungs got affected with fungi and her condition is serious. According to doctors she should go under BMT ASAP. To start BMT process we need at least 3 lakhs rupees(INR).

Ramalakshmi's friends have started collecting fund very aggressively and we have got support from all over the world. Its heart whelming to see such response from all people. Many people have joined with us in this campaign. Thanks a lot everybody... still we have to go a long way....

But we have very less time to do all the things, and it requires a sincere and steady effort.... I am sure together we can SAVE RAMALAKSHMI....

Few more details :
Hospital: CMC Vellore (current treatment is going on)
Department: Hematology Department
Name: G Ramalakshmi
Patient Number: 430307-D

For more details please check CMC Reports

BMT Cost breakup:

APPROXIMATE COST BREAK DOWN OF ALLOGENEIC BONE MARROW TRANSPLANTATION

(JANUARY – 2008)

CHRISTIAN MEDICAL COLLEGE AND HOSPITAL, VELLORE

1. HEPA Filtered BMT Room for 3-4 weeks Rs. 1,00,000/-

2. Drugs (Antimicrobial, Growth Factors etc.) Rs. 2,50,000/-

3. Blood and Components Rs. 2,00,000/-

(Packed cells, platelet concentrates, Fresh Frozen Plasma)

4. Investigations Rs. 1,75,000/-

(Blood counts, Cultures, LFTs, Electrolytes, Cross Match,

Drugs assays)

5. Disposables Rs. 1,50,000/-

(Leukocyte filters, online filters, transfer packs,

TPN Bags, Hickman Catheter)

6. Cyclosporine Rs. 1,50,000/-

7. Total Parental Nutrition Rs. 50,000/-

8. Transplant Fees Rs. 75,000/-

9. Other Hospital Costs - Rs. 1,00,000/-

(Outside BMT Room, other drugs, etc)

------------------

TOTAL Rs.12,00,000/-

------------------

These figures are approximate and depend on :

The disease
The age and weight of the patient
The post transplant complications
An uncomplicated transplant in a 12 kg child can cost Rs.5 Lakhs while serious complications (infections or graft versus host disease) after transplant can increase the cost to cost as much as Rs.20 Lakhs, mainly because of costs related to prolonged hospitalization, immunosuppressive drugs (ATG/ALG), antibiotics, transfusions and parenteral nutrition.

Needs to get operated Immediately

2009-05-01T11:12:00.000-07:00

She was admitted in CMC for diagnosing fungus until she gets operated for BMT. Now, doctors advised us to go for operation within 2 or 3 days. She needs atleast 3 lakhs now to start the process. We are getting very good response from all directions but only thing is lack of time. Lets hope that this money is arranged as soon as possible.

Friends..pleaseeeeeeeee save her life with your small contribution........

Condition is very CRITICAL now

2009-04-25T01:40:00.000-07:00

Yesterday we got to know that her lungs has been affected with Fungi, hence, we admitted her in CMC Vellore on Apr 24th 2009. Doctors suggested us to go for operation(BMT) with in 2 weeks else the fungi would spread all over her body. Until she gets operated we need to spend Rs 3ooo per day. Doctors advised us to pay Rs 2 Lakhs so that they can start the operation(BMT).

Think it is the time where we need to act seriously.

So..friends please act soon so that we can save her life.

SCANNED COPIES OF REPORTS

2009-04-25T00:48:00.000-07:00

A Big Sigh Of Relief....

2009-04-17T22:44:00.001-07:00

We got the test results and luckily her brother's HLA matched..

So..atlast we got a perfect donor..This helps us decrese the total cost..

Now the cost comes around 16 to 18 laksh and more..(12lakhs for stem cell transplantation and the rest for side effects)

I am trying my best to get the scanned/hard copy of the Reports by end of day or tomorrow so that we can act more aggressively.

Waiting for Mar 14th for BMT results

2009-04-11T21:10:00.001-07:00

On March 14th 2009, we are going to get BMT test results.

Lets Pray GOD that she gets a perfect HLA match from her family.

In case, if she is not going to get a perfect match, it costs around 20 lakhs extra to get a perfect donor.

Hats off to my friends

2009-04-08T20:21:00.000-07:00

Initilally I was scared when I got to know that she has to take the tests somewhere in a place called Vellore Tamil Nadu. She has almost "zero" support from her family. I was scared how she's gonna manage all the days and undergo BMT tests successfully.

Then I remembered one of my friends named JAGAN MOHAN who is doing his Mtech in VIT, Vellore. I really did not expect she would get a wonderful support from him. To my suprise, there's one more friend of mine VENKATARATNAM who is doing his Mtech in Bangalore, who went to Vellore..stayed there all the days and supported her.

They managed everything very well and the process had become very fast and she had undergone the tests successully.

Ramalaxmi and her family stayed in their room initially but being their Project submission date coming closer they had to manage in a lodge for the last 4 days. But I remeber their rommies staying in another room adjusting. Thanks GUYz...thanks a lot...

I remember they struggling hard to get the doctor's appointments, waiting there for hours, sleepless nights, helping her like she is a kid....

I should also thank one of my friends named SWAPNA(whose mother is also getting treated for APALSTIC ANEMIA in CMC Vellore) for her wonderful support.

HATS OFF friends...

There's still a long way to go and I really want you to support as you have supported now..

We are waiting for 14th March 2009 for the reports. We pray to GOD that she will get a perfect HLA match from her parents or siblings..

Watch her Video

2009-04-08T20:04:00.000-07:00

1st week at CMC, Vellore

2009-03-28T05:52:00.000-07:00

Ramalakshmi reached CMC on 23rd March. She is undergoing varoius test for last one week.

Ramalakshmi and her parents have undergone the HLA test today.

HLA test report will come by next week, so we've to wait till that time.

Some FAQ about Ramalakshmi's case:

Presently is that donor for bone marrow transplant is available?

--> No, we are searching for that, in that process Ramalakshmi's parents and siblings will
undergo the HLA test.
2. What is the current status?

--> Ramalakshmi is at CMC, vellore and undergoing various test. Only after a week time
we'll able to say exactly about future plan.

3. How much does HLA test cost?

--> IT costs Rs 6,000 (approx) per person. Once the HLA test is matched then only we can
go for BMT(Bone Marrow Transplant).

We've tried to compile the most frequently asked question, if still you have some query or doubt please feel free to ask any of us.

I would again like to thank all the donors for their generous contribution. Please check the spreadsheet for latest update.

Got appointment at CMC Vellore

2009-03-21T23:26:00.000-07:00

Ramalakshmi's has recovered well during last few days. We have taken appointment at CMC vellore for further checkup and mediciation. She has got appointment on 24th March, 2009. Lets hope for best...

We have got Rs 11,000 as donation in Ramalakshmi's UCO bank account. I would like to thank all the donors...some people have not sent the transaction details so I am unable to put there name in the excel sheet.

Some people has complaint that online transfer in UCO bank is not possible, so we have open another bank account with SBI. You can send your contribution to the SBI account as well.

SBI Account detail:

Name : G. Ramalakshmi
A/C No: 30715125200
Branch Name: NAVAL BASE VSP
Branch Code: 1610
IFSC Code: SBIN0001610
City/State: VISAKHAPATNAM, ANDHRA PRADESH
Pincode: 530014

Kindly send me an email with transaction details at ganand.song@gmail.com, so that we can acknowledge for the same.

Ramalakshmi's condition is critical

2009-02-09T07:29:00.000-08:00

Ramalakshmi's condition was serious for last 15 days. She was hospitalize at Giri Hospital, Vizag. She had serious side effect of medicine (Cyclosporine) . There was puss formation in her leg due to the side effect of medicines. She had undergone to surgery of both the legs. Currently she is not able to move around ...only may be after 10-15 days she'll able to walk around alone. In such condition it'll be very difficult to take her any where outside Vizag.

Ramalakshmi's friends have done excellent job and they have donated around 6 packeta of blood and 10,000 rupees. They are doing their best ...

Our next plan is to go to CMC vellore, but for that again we need monetary support. So please come forward and donate generously to save Ramalakshmi's life ....

Help Ramalakshmi

2009-01-01T20:59:00.000-08:00

G. Ramalakshmi is suffering from aplastic anemia for last 2 years. She had undergone the treatment at Sri Ramchandra Medical(SRM) Hospital, Chennai. But medication has not worked in her case. According to doctors now she has to undergo for bone marrow transplant(BMT). Cost of performing BMT in India is approx 10-12 lakhs. But Ramalakshmi's family is not in a position to bear this huge expense. Please come forward and support Ramalakshmi financially so that she can go for BMT.

Bank account detail:

Name : G. Ramalakshmi
A/C No. 07430110006757
IFSC Code: UCBA0000743
UCO Bank, HZS Factory Branch
Visakhapatnam - 530015

You can transfer money online or you can deposit the amount in one of the nearest UCO bank branch.

or you can transfer in SBI account:

SBI Account detail:

Name : G. Ramalakshmi
A/C No: 30715125200
Branch Name: NAVAL BASE VSP
Branch Code: 1610
IFSC Code: SBIN0001610
City/State: VISAKHAPATNAM, ANDHRA PRADESH
Pincode: 530014

After transferring money please send an email to ganand.song@gmail.com . We'll acknowledge for the same.

In case if you want to send your contribution directly to CMC, Vellore hospital, that is also possible.
Send your DD or cheque in favour of
"The Treasure, Christian Medical College, Vellore "
On the back of DD/ Cheque please write the following details:
Patient name: G. Ramalakshmi
Patient Number: 430307-D

Postal Address:
To,
Miss G. Ramalakshmi,
Patient Number: 430307-D
Department of Haematology,
Christian Medical College,
Vellore - 632004,
Tamilnadu

Ramalakshmi's medical reports:

HLA Report

Discharge summary - 1

Discharge summary - 2

Present Status: Ramalakshmi is presently at her grandparent's home in Vizag. She is regularly going under blood transfusion. She has to go to CMC vellore but due to financial crisis she is not able to go there. Your timely contribution can save her life...

If you have any further query or any question feel free to mail me. We'll keep you updated about Ramalakshmi's helath on a regular time interval.